PM Modi mumbai 6-month-old baby rare disease Rs 6 crore tax waived off humanitarian move

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Showing his humanitarian strategy, Prime Minister Narendra Modi has waived off Rs 6 crore as a GST quantity in opposition to Rs 16 crore of imported medicines required to deal with a six-month-old baby lady in Mumbai. She is affected by Spinal Muscular Atrophy, a really rare medical situation that usually would not let kids stay past 5-months.

Baby Teera’s mother and father have raised Rs 16 crore for her surgical procedure through crowdfunding. It consists of the price of the drugs Zolgensma which is required to be imported from the US. 

The household of the toddler had written to PM Modi about Teera’s medical situation. Former Chief Minister Devendra Fadnavis wrote to the prime minister and Finance Minister Nirmala Sitharaman reiterating the request to exempt taxes.

“There is an pressing want of a medication to avoid wasting the lifetime of a 5 month outdated child from Mumbai. I humbly request you to pave method for importing the drugs with exemption of varied duties. Looking on the monetary constraints of the mother and father and pressing want of saving life, this case wants pressing consideration,” Fadnavis had stated in his letter. 

“Teera Kamat, 5 month age lady is affected by rare genetic disease and solely a gene alternative remedy can remedy it. Gene Replacement remedy features a medication named Zolgensma which must be imported from USA costing Rs 16 crores in Indian foreign money. The lady’s mother and father have raised the requisite quantity via crowdfunding. Now the quantity that could be wanted to pay the taxes relevant on its import equivalent to customized obligation and GST involves round Rs 6 crores which is simply out of the attain for the lady’s mother and father. You are, due to this fact, humbly requested to kindly look into the matter and contemplate the mother and father’ request as a particular case to exempt the import of the drugs from all taxes relevant on it,” he had stated. 

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